FND Stories · Our community, in our own words
The messy days. The small wins. The people beside us. Honest life with FND, told by the people living it.
13 stories shared — and growing.
Voices, not case studies
No polished version. No need to make it inspirational. Just honest experiences that help the next person feel less alone.
01
My Story — From Losing Control to Finding My Passion. My business is more than just candles and fashion. It’s a story of resilience, hope and refusing to give
Read Suzy h’s story
02
FND has had a life changing impact on my life. The emotional scars of becoming disabled as a 13 year old are still felt to this day. It’s been a long hard battl
Read Liam Virgo’s story
03
I have written a diary of each day and each system for me to learn and understand what my body is telling me it’s challenging some days but it does get easier t
Read their storyEvery day can be very different, I can wake up with just pain and tremors, brain fog and then the aura hits and the seizures hit for the daily finale! It's even
Read Ashleigh nelson’s story
05
My day to day life is a struggle. Now at 18 years old I am still adjusting and making new adaptations to my life. On my good days I can make my own food and was
Read Mia’s story
06
As fnd is illness that not well covered hard sometimes people see but things start badly in early 2026 as lose balance and foot drop start make me think somethi
Read John’s story
07
Until about two and a half years ago, I had never heard of Functional Neurological Disorder (FND). I didn’t have it. I still don’t. And somehow it rewired my wh
Read Matthew’s story
08
The day-to-day reality of living with FND (Functional Neurological Disorder). Not long ago I was a 6’1”, 21-stone prop forward, training six days a week. Today
Read Rhys O'Sullivan’s storyHi all, My name is Liam Jay Squires. I’m 30 and have had several health conditions from birth. These include spina bifida and neuropathic bladder, and, since 20
Read Liam Jay Squires’s story
10
Each day is a bit of a lottery. Some days I can get out of bed and know the day will be reasonably good. It can change in a heartbeat as the day goes ahead. So
Read Kate on the wonk’s story
11
Since the 10th December my right leg has remained paralysed making it difficult to walk. My right arm has weakened significantly and I can not lift it above my
Read Danielle Armstrong’s story
12
My Journey with Functional Neurological Disorder (FND) As a nurse, I have spent years caring for people living with Functional Neurological Disorder. I have sup
Read Tricia Hughes’s story
13
I have been living with Functional Neurological Disorder since 2021. Before it all began, there was already a lot happening in my life. I had Covid and became r
Read Emma’s storyWhy these voices matter
Every story is different. Together they make FND more visible, more understood and harder to dismiss.
Before you share
Personal experience belongs to the person who lived it. You decide what to say and how you appear.
They are first-person accounts from people affected by Functional Neurological Disorder. Stories are reviewed before publishing and shared to build understanding and reduce isolation — not to diagnose or treat.
Create or sign in to a free FND Connect account, open Share your FND story, write with our guided prompts or free-form, optionally add a photo, and submit for review. You can save a draft first.
Yes. You can choose a display name and whether to publish anonymously. Every story is reviewed before it goes live so you stay in control of what the public sees.
No. These are personal experiences, not clinical case reports. Always seek personal medical advice from a qualified professional about your own symptoms or treatment.
