FND Support Groups That Feel Right for You
FND support groups can offer understanding, practical ideas and less isolation. Learn how to find a group that feels safe and right for you in the UK.
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Personal stories, practical reflections and honest notes about living with Functional Neurological Disorder. New guides now cover sleep, symptom hangovers, heat and seizure thresholds, driving rules, sensory overload, neurodivergence, hypermobility, hormone tracking, emergency symptoms, PIP, work adjustments, pacing, relationships and diagnosis.
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52 posts
Is FND a protected disability under UK law?
Is FND a protected disability? Understand Equality Act rights at work, in education and services, plus steps to ask for reasonable adjustments in Britain.
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Help, I've Lost My Partner to TikTok!
One minute your partner seemed isolated from the world. The next, they are constantly on TikTok, joining lives and talking about people from FND Connect as though they have known them forever.
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Is an FND Symptom Journal Better Than a Diary?
FND symptom journal versus diary: understand the difference, choose a format that feels manageable, and turn notes into clear, useful appointment evidence.
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FND Versus Stroke Symptoms: When to Call 999
FND versus stroke symptoms can look similar. Learn when to call 999, what to note, and how to prepare for urgent care after a known FND diagnosis safely.
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FND Employment: Working With Changing Symptoms
FND employment can be possible with the right adjustments, honest conversations and a plan that respects fluctuating symptoms, energy and safety needs daily.
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Going on Dates with FND: Third-Wheeling
I took Emma out for dinner. FND came too. We still had one of the funnest, most memorable evenings we have had in a long time — because I refused to be embarrassed, and I laughed with her, never at her.
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When care becomes control
Sometimes abuse sounds like care. A partner or carer can use illness, flares and “I’m only looking after you” to close the door, take the card and answer the phone for you.
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Is FND a Neurological Condition? A Clear Answer
Is FND a neurological condition? Understand what FND means, why symptoms are real, and how to prepare for supportive NHS conversations and care at home.
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FND Home Adaptations: OT Assessments and Disabled Facilities Grants
If stairs, bathing, cooking or getting through your own front door has become unsafe or unreliable, you can ask for a home assessment. FND can be relevant, but funding is based on the barrier and assessed need—not the diagnosis label alone.
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How to Explain FND to Family Without Defending Yourself
Learn how to explain FND to family in clear, calm words, set boundaries around disbelief, and ask for practical support when symptoms fluctuate safely.
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FND Clinician Training That Patients Can Feel
FND clinician training can improve care when it combines sound knowledge, careful listening, clear explanations and practical support for each patient.
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Domestic abuse and FND: when something doesn’t feel right
Abuse is not always physical. It can look like someone taking control of your money, medication, phone, appointments, friendships or freedom—and it can happen so gradually that it starts to feel normal.
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Travel Insurance With FND: What to Declare and Check
Having Functional Neurological Disorder does not automatically stop you getting travel insurance. The important part is to answer the insurer’s medical questions accurately, make sure FND-related problems are not silently excluded, and keep written proof of what the policy will cover.
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FND and Attendance Allowance: Help After State Pension Age
If FND means you need help with personal care or someone nearby for safety, you may be able to claim a pension-age disability benefit. The diagnosis is not the deciding factor: the form needs to show what help or supervision you reasonably need, how often and whether that need happens by day, at night or both.
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Can Stress Worsen FND Symptoms? What Helps
Can stress worsen FND symptoms? Learn why symptoms may flare, how to spot patterns, and gentle, practical ways to support yourself safely with care, too.
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FND Causes: Why Symptoms Are Real and Variable
Understanding FND causes: why symptoms are real, why there is rarely one explanation, and how to make sense of diagnosis, triggers and next steps today.
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Every Gift Gives — and Why the FND Shop Is Staying
We wanted a dependable new way to fund FND support without asking people to make an extra donation every time. Every Gift Gives is kindly run by our partner GiftMasters LTD, and 100% of net profits are donated to FND Connect. It began with something millions of us already do: choosing gifts for people we care about.
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FND and Jury Service: Adjustments, Deferral and Excusal
A jury summons can feel daunting when FND affects movement, awareness, speech, concentration, fatigue or recovery. This guide explains how to reply, what help to ask about and when a different date or excusal may be the more realistic request.
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FND Memory Problems and Everyday Support
FND memory problems can be frightening and disruptive. Learn why they happen, practical ways to cope, and when to seek medical advice and support locally.
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FND Pain Management When Every Day Changes
FND pain management: practical, compassionate ways to track pain, protect your energy and prepare for NHS appointments as symptoms change day to day.
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FND Treatment Postcode Lottery: National Pathways, Local Gaps
Why FND care still depends on where you live in the UK. National pathways exist, but many ICBs and health boards have not funded them. Explore the live map and what to do next.
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FND and Exam Access Arrangements: GCSEs, A Levels and What to Ask For
FND can make an exam harder to access without changing what you know. The useful question is not “Does this diagnosis get extra time?” but “What barrier happens in exams, and which arrangement lets this student show their knowledge fairly?”
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Carer's Allowance and FND: A Practical UK Guide for Unpaid Carers
If you regularly help someone with FND, you may be doing the work of an unpaid carer even if neither of you uses that word. Carer's Allowance is not awarded because of the diagnosis itself: the deciding rules are the care you provide, the disability benefit the person receives and your own circumstances.
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Does Stem Cell Treatment Work for FND?
It is a fair and hopeful question. Stem cells are often talked about as a repair kit for the body, so it makes sense to ask whether they could fix FND too. The short answer is no — and the reason why is actually one of the more hopeful things about FND.
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Functional Seizures in Wales: What New Research Means for Care
A major meeting in Wales brought together patients, families, neurologists, researchers and patient organisations to examine new population research on functional seizures — and what needs to change in the care pathway. The medical detail was dense, so FND Connect has produced a free plain-English report anyone can open and understand.
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Disabled Students' Allowance for FND: A Practical UK Guide
If FND makes studying harder or more expensive, you may be able to get Disabled Students' Allowance. The useful evidence is not simply the diagnosis: it is how your symptoms create barriers to learning, travel, communication and completing your course.
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This Is What Community Looks Like: Two Wheelchairs Funded This Week
This week FND Connect issued grants for two wheelchairs — practical mobility support for real people living with Functional Neurological Disorder. That is your kindness in action.
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Can FND Cause Pain? Chronic Pain, Flare-Ups and What Can Help
Pain is common alongside Functional Neurological Disorder, and it can be every bit as real and disabling as weakness, tremor or seizures. But that does not mean every new pain should be labelled “just FND”.
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FND and Intimacy: Sex, Relationships and Feeling Close Again
When symptoms change, closeness can change too. That does not mean connection has to disappear.
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The Strange Language So Many of Us Speak During an Episode
Broken words, sudden stutters, total silence or fluent, unrepeatable "ancient languages from the land before time". Why FND episode speech happens, why it's not faking, and why so many of us sound weirdly alike.
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"But You Walked Yesterday": Using a Wheelchair or Walking Stick Part-Time With FND
FND mobility can change from one day, or even one hour, to the next. This is a practical, judgement-free guide to using a wheelchair or walking stick part-time, choosing the right aid, and handling the comments that come with fluctuating ability.
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Parenting a Child With FND: Calm, Clarity and What Actually Helps
Functional Neurological Disorder is hard for adults and clinicians to understand. For a child, it can be even more confusing. Parents are left trying to learn the condition, steady their own fear and help their child feel safe at the same time.
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"You Can Recover" — Hopeful, or Another Pressure on People With FND?
Hope matters. But when recovery is presented as an expectation rather than a possibility, people whose FND symptoms persist can be left feeling blamed, judged or as though they have failed treatment.
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"Where Did Everyone Go?" — The Friendships FND Changes or Ends
FND does not only change bodies and routines. It can change who calls, who keeps inviting you, who believes you and which friendships are able to adapt when life becomes unpredictable.
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FND and the Dentist: Navigating Dental Care with Functional Neurological Disorder
Dental care can be particularly daunting when managing FND symptoms. Bright lights, loud drills, and vibrations can act as significant triggers. A practical guide to navigating dental appointments, fostering better communication, and advocating for reasonable adjustments for a safer and more comfortable experience.
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Can I Fly With FND? Air Travel, Pressure Triggers and Cabin Crew Letters
Flying with Functional Neurological Disorder is not a simple yes or no. The useful question is whether your current symptom pattern, pressure sensitivity, airport load and recovery plan make this journey manageable today.
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FND and the "Am I Faking It?" Spiral
FND can make you doubt your own reality. Not because the symptoms are fake, but because fluctuating symptoms, normal tests, stigma and disbelief can teach you to question yourself before anyone else gets the chance.
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Parenting Teenagers With FND: Guilt, Overstimulation and Boundaries
When you have Functional Neurological Disorder, parenting can become a sensory and emotional balancing act. You can love your children deeply and still need distance from the noise, arguments and intensity that teenagers sometimes bring.
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The FND Good-Day Problem: Why Looking Better Doesn't Mean You're Better
A good day with Functional Neurological Disorder can still be a carefully managed day. It can mean planning, pacing, masking, aids, recovery time and a cost that other people do not see.
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FND and Sleep: Why a Bad Night Can Lower Your Symptom Threshold
Poor sleep can reduce the spare capacity your nervous system has to stay regulated. Here is how to plan the next day with FND.
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The FND Symptom Hangover: Why One Busy Day Can Cost Three Days
One busy day can create a delayed FND flare. Learn how recovery debt works and how to plan activity without feeding boom-and-bust cycles.
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FND and Heat: Hot Weather, Functional Seizures and Staying Cool
Heat is not just uncomfortable for many people with FND. SeizeControl evidence shows that rising environmental temperature can lower the nervous-system threshold for functional seizures, tics, tremor and overload, making forward planning essential when the forecast climbs.
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Can You Drive With FND? DVLA Rules and Functional Seizures
FND symptoms vary hugely, so UK driving rules are not applied by the diagnosis label alone. They are applied by the symptom, the risk, the licence group and whether you can drive safely today.
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FND, Sensory Overload, Neurodivergence and Hypermobility
Why autism, ADHD, hEDS, HSD, sensory overload and functional neurological symptoms keep coming up in the same conversations - and how to make the overlap useful without over-claiming it.
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FND Flare Up or Medical Emergency? A Safety-First Guide
A practical guide to deciding when symptoms fit a familiar FND flare up and when they need urgent medical help because they are new, sudden, severe or different.
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FND, Periods, Perimenopause and Seizure Tracking
A practical guide to noticing patterns around periods, perimenopause, menopause and functional seizures without turning every symptom into a hormone explanation.
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FND and PIP Benefits: UK Support, Evidence and Mobility Help
A practical guide to PIP, Adult Disability Payment, benefits checks, Blue Badge, Motability and mobility support when Functional Neurological Disorder affects everyday life.
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FND and Working: Reasonable Adjustments, Sick Leave and Access to Work
What to ask for, what your employer should consider, how sick leave works, and where to get help when FND starts affecting your job.
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Loving Someone With FND: The Partner No One Sees
The emotional reality of being a partner, not just a caregiver.
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Pacing Guide: Pacing Not Racing With FND
A practical guide to finding your pacing sweet spot: doing what matters while protecting energy for later.
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