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66 posts

Symptom Tracker Comparison for FND
By FND Connect FND living

Symptom Tracker Comparison for FND

Compare paper diaries, general health apps and SeizeControl: our recommended free tracker designed around FND symptoms, functional seizures and appointments.

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The FND Connect Ouchie in pink with navy ends, a handheld textured sensory tool
By Matthew G. Inside FND Connect

Introducing the FND Connect Ouchie

We were training social workers in Liverpool when Amy Nash’s tremors spiralled. We put an Ouchie in her hand. Within seconds they stopped. Grant at GS3Ds has now made them in FND Connect colours — £6, and 20% of every sale comes back to us.

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FND Connect I Have Seizures disability card, front and back, on a blue lanyard
By FND Connect FND living

FND Emergency Cards for Calm, Safer Care

You should not have to explain FND from scratch in the middle of an episode. FND Connect already makes credit-card-sized emergency cards with a lanyard — seizures, tremors, speech and vocal tics — for £4.99. 100% of profit comes back to our work.

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Kingswood Community Centre in Hull, one of the venues used by an FND Connect local support group
By FND Connect FND living

FND Support Groups That Feel Right for You

You do not have to hunt around for an FND group that understands fluctuating symptoms. FND Connect already runs a growing nationwide network of free, peer-led local groups. Search by town or postcode, register for a date, and come if you can.

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FND Connect graphic showing a couple laughing over a smartphone, with the headline Help, I've lost my partner to TikTok
By Matthew Gerdes-Hansen Relationships and caregiving

Help, I've Lost My Partner to TikTok!

One minute your partner seemed isolated from the world. The next, they are constantly on TikTok, joining lives and talking about people from FND Connect as though they have known them forever.

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A couple laughing together in a busy casual restaurant booth
By Matthew G. Relationships and caregiving

Going on Dates with FND: Third-Wheeling

I took Emma out for dinner. FND came too. We still had one of the funnest, most memorable evenings we have had in a long time — because I refused to be embarrassed, and I laughed with her, never at her.

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FND Connect graphic reading When care becomes control, with a partner holding a bank card while a family call is ignored
By FND Connect Relationships and safety

When care becomes control

Sometimes abuse sounds like care. A partner or carer can use illness, flares and “I’m only looking after you” to close the door, take the card and answer the phone for you.

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FND Connect graphic reading Travel Insurance With FND, beside a traveller reviewing a blank policy sheet with a suitcase and walking stick
By FND Connect Travel and insurance

Travel Insurance With FND: What to Declare and Check

Having Functional Neurological Disorder does not automatically stop you getting travel insurance. The important part is to answer the insurer’s medical questions accurately, make sure FND-related problems are not silently excluded, and keep written proof of what the policy will cover.

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FND Connect graphic reading FND and Attendance Allowance, beside an older adult reviewing blank paperwork with a relative
By FND Connect Benefits after State Pension age

FND and Attendance Allowance: Help After State Pension Age

If FND means you need help with personal care or someone nearby for safety, you may be able to claim a pension-age disability benefit. The diagnosis is not the deciding factor: the form needs to show what help or supervision you reasonably need, how often and whether that need happens by day, at night or both.

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Every Gift Gives — one gift, twice the joy
By FND Connect Inside FND Connect

Every Gift Gives — and Why the FND Shop Is Staying

We wanted a dependable new way to fund FND support without asking people to make an extra donation every time. Every Gift Gives is kindly run by our partner GiftMasters LTD, and 100% of net profits are donated to FND Connect. It began with something millions of us already do: choosing gifts for people we care about.

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FND Connect graphic reading FND and Jury Service, Your UK Options, with an adult carrying a walking stick in a courthouse
By FND Connect Rights and daily life

FND and Jury Service: Adjustments, Deferral and Excusal

A jury summons can feel daunting when FND affects movement, awareness, speech, concentration, fatigue or recovery. This guide explains how to reply, what help to ask about and when a different date or excusal may be the more realistic request.

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FND Connect graphic reading Carer's Allowance and FND, beside two adults reviewing paperwork together at a kitchen table
By FND Connect Benefits and unpaid carers

Carer's Allowance and FND: A Practical UK Guide for Unpaid Carers

If you regularly help someone with FND, you may be doing the work of an unpaid carer even if neither of you uses that word. Carer's Allowance is not awarded because of the diagnosis itself: the deciding rules are the care you provide, the disability benefit the person receives and your own circumstances.

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FND Connect social graphic asking Do stem cells work for FND, with the honest evidence and what actually helps
By FND Connect Updated 19 July 2026

Does Stem Cell Treatment Work for FND?

It is a fair and hopeful question. Stem cells are often talked about as a repair kit for the body, so it makes sense to ask whether they could fix FND too. The short answer is no — and the reason why is actually one of the more hopeful things about FND.

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Illustration representing functional seizures and the need for clearer FND care pathways
By FND Connect Research & care pathways

Functional Seizures in Wales: What New Research Means for Care

A major meeting in Wales brought together patients, families, neurologists, researchers and patient organisations to examine new population research on functional seizures — and what needs to change in the care pathway. The medical detail was dense, so FND Connect has produced a free plain-English report anyone can open and understand.

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FND Connect graphic reading Disabled Students' Allowance for FND, beside a student using a laptop at an accessible study desk
By FND Connect Education and student support

Disabled Students' Allowance for FND: A Practical UK Guide

If FND makes studying harder or more expensive, you may be able to get Disabled Students' Allowance. The useful evidence is not simply the diagnosis: it is how your symptoms create barriers to learning, travel, communication and completing your course.

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A tired person sitting by a mirror with headphones, a symptom diary, medication organiser, paperwork and a folded walking stick nearby
By Matthew G. FND stigma and self-doubt

FND and the "Am I Faking It?" Spiral

FND can make you doubt your own reality. Not because the symptoms are fake, but because fluctuating symptoms, normal tests, stigma and disbelief can teach you to question yourself before anyone else gets the chance.

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A person planning hot weather pacing with water, a fan, a cooling towel and a symptom tracking notebook
By Matthew G. Heat, pacing and seizure tracking

FND and Heat: Hot Weather, Functional Seizures and Staying Cool

Heat is not just uncomfortable for many people with FND. SeizeControl evidence shows that rising environmental temperature can lower the nervous-system threshold for functional seizures, tics, tremor and overload, making forward planning essential when the forecast climbs.

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